Rare disease patient insight subscription platform launched

US – New business PatientSight has established a subscription service offering continuous data on patients with rare diseases.

doctor in white coat and patient having a discussion

PatientSight is a subscription-based platform aimed at those working in life science market research, marketing, new product planning, consulting, communications, and other functions involved with rare disease areas.

The platform organises the patient journey by disease, treatment and brand experience, with surveys recurring throughout the year.

PatientSight is co-founded by healthcare industry veteran Dave Muggler, who has spent 20 years in life science market research and analytics and previously held roles at PDI, Syneos Health and TGaS Advisors.

Alongside Muggler, co-founder Jason Fox has held various positions in healthcare and pharmaceuticals, with a focus on data analytics and client service. He previously ran the syndicated market research business lines at Verispan, InVentiv and Syneos Health.

Dave Muggler, president, and co-founder of PatientSight, said: “The successful planning and marketing of new products and treatments for rare diseases requires a constant finger on the pulse of these unique patient types.”

PatientSight partners with patient recruitment company Rare Patient Voice, which has a network of around 145,000 patients covering 1,500 rare and non-rare diseases.

Wes Michael, president, Rare Patient Voice, said: “Together, we look forward to sharing the opinions and insights of patients with researchers and companies, so  they can be considered in the development and management of new and current life-changing products and services.”

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